11-year-old with Sarcoma
Please find medical reports, scans, blood test attached. It seems time is of essence. As doctors in XX and YY are ready to take him in. We only know of chemotherapy. We will be having our 2nd opinion tomorrow at YY.
My son is 11years. Doctors are ready to begin with chemo, surgery and chemo.
If you are know of someone kindly refer.
Family Conference Checklist for Newly Diagnosed Cancer Patient
Staff in attendance: Prof X, Dr. K and Dr. W
Diagnosis: Osteosarcoma, spread to lung, spread to bone. Behaviour – aggresssive. Serious disease.
Percentage of cure: Cure 10 to 20 %. In case of lung + bone, sprad.
Chemotherapy and side effects: M5K protocol. Cisplatin, andriamycin, methotrexate, Ifosfamide, Etoposide.
Hair fall, bone marrow – low red cell, low platelet — bleeding, low white cell – risk of infection. Vomit – give anti-vomiting medicine.
Cisplatin: hearing tone, deafness – hearing test. Kidney, Infertility.
Doxorubicin: Affect heart, heart functin test and monitor. Need to use very high dose.
Ifosfamide: side effect on kidney, electrolytes loss from kidney, sometime can cause seizure, Infertility – sperm banking, parents to consider.
Etoposide: strong medicine. 1% leukemia.
Immunotherapy is still experimental, not proven.
Surgery: After week 9 – 10 of chemo … will decide for type of surgery.
Duration of treatment: Every 3 weeks cycle.
Other precautions (e.g. diet, hygiene): to avoid crowded places, eat well cooked, clean food, no salad, no rotten food, home cooked, fruits – fresh, peel skin, not to go to school during treatment. Any fever, unwell need to come back immediately.
Reply: The treatment would be hard on an 11-year-old. Do take time to consider properly. No time is not the essence here! The cancer has already spread.